Dealing With Cold Temperatures While Living With Muscular Dystrophy

It is now November in good old New Jersey and that means the temperatures are starting to go down. It’s now time to prepare for barely going outside the next 4-5 months. It is now hitting 32 degrees at night and supposed to hit that during this upcoming week. If you live with Muscular Dystrophy, then you know that cold temperatures don’t get along well with us. I start having difficulty at about any temperature below 60 degrees. It’s also quite difficult to get and stay warm. It becomes a constant struggle with people being too warm in the house when you’re finally warm enough.

Cold temperatures reduce the little ability I have to begin with. Personally, my legs and feet become like ice and hands get so stiff that I can barely move my fingers to move my wheelchair’s joystick. One of the biggest reasons that people who have MD are constantly cold is because we have poor circulation. This is because we don’t really have too much movement.

The answer most people will think of is just putting on gloves, thicker socks, and a warm jacket but unfortunately I have yet to find gloves that are able to fit my hands properly and still allow me to use my joystick. I have difficulty putting on and taking off jackets because of my arms and they reduce my movement. I still wear lighter jackets and sweatshirts but that usually isn’t good enough when it becomes colder. I usually end up going with a blanket over me which does the trick enough to get in and out of the car. In the house, I sit with a heated blanket which works quite well. For my feet I have battery heated socks that work quite well.

To keep my hands warm enough, I usually attach a HotHands hand warmer by my joystick and then cover it and my hand with the blanket and that keeps it nice and warm. I’m always looking for new ideas or solutions to keep me warm. In fact, just today I ordered a heated blanket that works with a rechargeable battery pack. I will probably make a review video for my YouTube channel once I receive it.

If anyone has any tips or questions, please feel free to leave a comment.